Celine Dion diagnosed with stiff-person syndrome, reveals in emotional video

Dr. Jen Ashton explains the rare neurological disorder.
1:58 | 12/08/22

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Transcript for Celine Dion diagnosed with stiff-person syndrome, reveals in emotional video
ADMINISTRATION AND EVERYONE INVOLVED IN GETTING BRITTNEY FREE. IN AN EMOTIONAL VIDEO THIS MORNING, MUSIC SUPERSTAR CELINE DION WITH A MAJOR MEDICAL ANNOUNCEMENT. SHE'S BEEN DIAGNOSED WITH A RARE NEUROLOGICAL SYNDROME CALLED STIFF PERSON SYNDROME. I KNOW SHE MENTIONED 1 IN A MILLION? >> YEAH. WHEN I WAS IN MEDICAL SCHOOL, WE NEVER LEARNED ABOUT THIS. MOST DOCTORS HAVE NEVER HEARD OF IT. BASICALLY A CHRONIC AND OFTEN DEBILITATING NEUROLOGIC CONDITION. WE DON'T KNOW WHAT CAUSES IT. THEREFORE IT'S HARD TO DIAGNOSE. THERE REALLY IS NO TREATMENT. THERE'S JUST MANAGEMENT. BUT CAUSES STIFFNESS, MUSCLE SPASMS. REMEMBER, WHEN WE TALK ABOUT MUSCLES, CHEWING, SINGING, TALKING, SWALLOWING, BREATHING, AS WELL AS WALKING ALL POTENTIALLY AFFECTED HERE. IT COULD BE PAINFUL. A LOT OF THE TREATMENTS, MUSCLE RELAXANTS, HAVE THEIR OWN SET OF REALLY NEGATIVE POTENTIAL SIDE EFFECTS. SO, VERY, VERY DIFFICULT. AND WHEN YOU TALK ABOUT BEING THE PATIENT AND HEARING YOU HAVE A RARE DISEASE, THAT'S NOT WHAT YOU EVER WANT TO HEAR. >> NOT AT ALL. >> LIKE YOU SAID, IT IS RARE, SO IS THERE TREATMENT FOR IT? >> WHAT'S INTERESTING IS EVEN THOUGH IT'S RARE, 1 IN A MILLION, THERE ARE AN ESTIMATED 25 MILLION AMERICANS WHO THEMSELVES ARE DEALING WITH A RARE CONDITION. SO, THE NIH ACTUALLY HAS A DIVISION, MEDICAL DETECTIVES THAT LOOK INTO THESE RARE CONDITIONS. YOU CAN SUBMIT AN APPLICATION AND GO TO AN NIH CENTER OR THE ACTUAL HEADQUARTERS IN BETHESDA TO BE EVALUATED. BUT IN TERMS OF THIS STIFF PERSON SYNDROME, IT'S BENZO DIAZ PEENS. >> EXPLAIN BEING DIAGNOSED WITH A RARE DISEASE. >> THERE'S ALWAYS HOPE, AND THAT'S WHAT OUR JOB IS AS

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